World Parents of sick British baby return to court

15:51  13 july  2017
15:51  13 july  2017 Source:   usatoday.com

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To find out more about Facebook commenting please read the Conversation Guidelines and FAQs. Parents of sick British baby Charlie Gard return to The parents of critically ill baby Charlie Gard, Connie Yates and Chris Gard arrive at the Royal Courts of Justice in London. Thursday July 13, 2017.

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The parents of critically ill baby Charlie Gard, Connie Yates and Chris Gard arrive at the Royal Courts of Justice in London. Thursday July 13, 2017.: The parents of Charlie Gard, Connie Yates and Chris Gard, arrive at the Royal Courts of Justice in London on Thursday.© Jonathan Brady, AP The parents of Charlie Gard, Connie Yates and Chris Gard, arrive at the Royal Courts of Justice in London on Thursday.

LONDON — The parents of Charlie Gard, the terminally ill British baby at the center of a trans-Atlantic appeal, returned to a court here Thursday in a renewed effort to keep their son alive.

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High Court Judge Nicholas Francis on Monday gave the 11-month-old’s parents, Chris Gard and Connie Yates, 48 hours to present new evidence that Charlie should receive experimental treatment in the United States or another country.

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High Court Judge Nicholas Francis on Monday gave the 11-month-old’s parents 48 hours to present new evidence. FUENTE

The mother of the critically ill baby at the center of an global medical and legal battle returned to London's High Court on Tuesday, asking a judge to let the family take Charlie home for "a few days of tranquility" before his ventilator is disconnected and he is allowed to "slip away".

Charlie suffers from a rare incurable condition called mitochondrial depletion syndrome. He has brain damage, is blind and deaf and cannot breathe without a ventilator.

Great Ormond Street Hospital in London, which has cared for Charlie since October, was scheduled to turn off the baby’s life support on June 30 after his parents lost an appeal to the European Court of Human Rights to take him to the U.S. for trial therapy.

Pope Francis and President Trump have both intervened to try and help Charlie and his parents. In Britain, the courts and not the parents can make an ultimate decision when parents and doctors disagree on the treatment of those who cannot speak for themselves.

Gard, 32, and Yates, 31, have raised $1.7 million for Charlie’s treatment in the U.S. through crowdfunding. A U.S. doctor has offered to treat the baby.

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ABOVE: The parents of critically-ill baby Charlie Gard returned to the Royal Court of Justice in London on Thursday as they continued their appeal for the right to take him to the United States for READ MORE: Terminally ill British boy case heads to court today in light of new evidence.

The European Court of Human Rights on Monday rejected a case from British parents who want to take their terminally ill toddler to Italy for treatment instead of allowing a U.K. hospital to remove him from life support.

Great Ormond Street Hospital applied for the new court hearing after experts at the Vatican children’s hospital in Italy said unpublished research suggested that Charlie's condition might improve if he gets the experimental nucleoside therapy.

The therapy has reduced the symptoms of certain types of mitochondrial disease in mice but has never been used on mice or people with Charlie's condition.

“Two international hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment. And we believe, in common with Charlie’s parents, it is right to explore this evidence," the hospital said in a statement last week.

“We are continuing to spend every moment, working around the clock to save our dear baby Charlie,” Gard and Yates said in a statement before Thursday's hearing.

“We’ve been requesting this specialized treatment since November, and never asked the hospital, courts or anyone for anything — except for the permission to go.”

U.S. expert flies to Britain to examine baby Charlie Gard .
<p>A U.S doctor offering experimental treatment to a critically ill British baby is due in London this week to help persuade a judge to keep the boy's life support switched on, in a case that has prompted a fierce debate around the world about medical ethics.</p>The parents of Charlie Gard, who has a rare genetic condition causing progressive muscle weakness and brain damage, have been fighting a legal battle to send him to the United States for the neurologist's experimental therapy. But Britain's courts have refused permission on the grounds it would prolong his suffering without a realistic prospect of it helping.

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