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World U.S. doctor says "small but significant" chance of helping baby Charlie Gard

23:30  13 july  2017
23:30  13 july  2017 Source:   Reuters

Despite big offers, little has changed for baby Charlie Gard

  Despite big offers, little has changed for baby Charlie Gard <p>The terminally ill baby is at the center of a global crusade to have him treated in the United States.</p>LONDON — The president of the United States has offered to help. The pope is willing to have the Vatican hospital take him in. Some 1.3 million pounds ($1.68 million) have been raised to help him leave Britain for treatment.

Doctors Across The World Are Fighting To Treat Charlie Gard . Why has the case of British 11-month-old baby Charlie Gard struck an international nerve? Even the hospital admitted there is a “very small theoretical chance ” that the therapy would work and that “this treatment could

A U .K. Court Has Set a New Hearing Date in the Case of the Terminally Ill Baby Charlie Gard . "I hope they can see there is more of a chance than previously thought and hope they trust us as parents and trust the other doctors ," she said .

The parents of critically ill baby Charlie Gard, Connie Yates and Chris Gard arrive at the High Court in London, Britain July 13, 2017.© REUTERS/Peter Nicholls The parents of critically ill baby Charlie Gard, Connie Yates and Chris Gard arrive at the High Court in London, Britain July 13, 2017. A U.S. doctor offering experimental treatment to a critically ill British baby could fly to London in the next few days in a bid to help persuade a judge not to allow a hospital to turn off his life support.

The parents of 11-month-old Charlie Gard have been fighting a legal battle to send their son to the United States for the experimental therapy, but Britain's courts have refused permission on the grounds it would prolong his suffering without any realistic prospect of it helping.

New York Hospital Offers to Treat British Baby With Rare Disease

  New York Hospital Offers to Treat British Baby With Rare Disease <p>A leading academic medical center in New York City has offered to treat Charlie Gard, an 11-month-old infant in Britain who was born with a rare and fatal genetic disease.</p>A leading academic medical center in New York City has offered to treat Charlie Gard, an 11-month-old infant in Britain who was born with a rare and fatal genetic disease.

Upon learning of baby Charlie Gard ’ s situation, President Trump has offered to help the family in this heartbreaking situation. “Due to legal issues, we cannot confirm the name of doctor or hospital where the baby could be treated in the United States,” said a White House spokesperson.

The baby ' s life support was due to be switched off last week, but the hospital delayed in order to "Our priority has always been, and will always be, the best interests of Charlie Gard ," the hospital "I've heard from doctors that there' s around a 10 percent chance of this working for Charlie so I

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Charlie suffers from a form of mitochondrial disease, a rare genetic condition causing progressive muscle weakness and brain damage, and London's world-renowned Great Ormond Street Hospital for Children (GOSH) says he has no quality of life so his life support should be turned off.

The case has garnered worldwide attention after interventions by U.S. President Donald Trump and Pope Francis, who both voiced support for Charlie on Twitter.

GOSH asked London's High Court for a new hearing last week after his parents, Connie Yates and Chris Gard, said they had new evidence the U.S treatment would improve Charlie's condition.

Appearing via video link from New York, the U.S. doctor offering the treatment, who cannot be named for legal reasons, said new data and analysis of his research work since the case was first heard in April had given a better perspective on the chances of the treatment's success.

New hearing Monday for terminally ill British baby

  New hearing Monday for terminally ill British baby Connie Yates and Chris Gard rallied support for their son on Sunday, extending a campaign to move the 11-month-old to America -- after doctors and judges in England determined that Charlie should be taken off life support."Unfortunately, they are not specialists in Charlie's condition, the specialists are in America -- where we want to go," Chris Gard says.Charlie was born healthy but a severe genetic condition soon left him blind, deaf and unable to breathe. His doctors saw no hope of recovery.

Cross-examined about the potential treatment by the barrister for GOSH, the US-based doctor said there was “a small but significant chance of improvement in the brain.” News. Court rules hospital can withdraw life support for sick baby Charlie Gard .

In March, however, Charlie ’ s doctors recommended that they remove his life support, saying there was nothing more they could do to help him. VIDEO SAVE CHARLIE , New Evidence Concerning Treatment for Baby Charlie Gard .

He told the court there was between 11 and 56 percent chance the nucleoside therapy would improve the baby's muscular strength and that there was a "small but significant" chance it would also improve brain functions.

One of the key arguments in the case has been whether any of the brain damage Charlie has suffered is reversible and whether he is suffering.

His parents stormed angrily out of the hearing shortly before the lunch break after the judge said they had agreed that Charlie's life without any medical improvement was not worth sustaining.

"We have said he's not suffering, he's not in pain," Yates said.

The U.S. expert said the reports of brain scans suggested that Charlie had brain disorder rather than structural damage. He said the better muscular strength would allow a better assessment of his brain condition.

"In my view my keeping Charlie on artificial ventilation will not cause significant harm because he does not seem to be in pain," he said.

Lawmakers Push to Give Terminally Ill British Baby U.S. Residency

  Lawmakers Push to Give Terminally Ill British Baby U.S. Residency Legislation by two Republicans would apply if a court allows the 11-month-old Charlie Gard and his parents to seek treatment in the United States. Giving the family lawful permanent status in the United States “would allow them to at least pursue their best hope for Charlie,” Mr. Franks wrote in an opinion piece published on Tuesday by Fox News.But it is also unlikely to become law, according to some immigration experts, because it was filed under a parliamentary procedure known as a “private bill” that is traditionally used to help people who are already living in the United States avoid being deported.

The parents of the terminally ill baby , Charlie Gard , have not given up on his son because of his condition. They delivered a petition to move him to the U . S . Charlie ’s father says that an American hospital has offered help so his soon undergo treatment by doctors who are specialists in Charlie ’s

The parents of the terminally ill baby , Charlie Gard , have not given up on his son because of his condition. They delivered a petition to move him to the U . S . Charlie ’s father says that an American hospital has offered help so his soon undergo treatment by doctors who are specialists in Charlie ’s

The doctor, who has never seen Charlie and has had limited access to his medical records, said he was prepared to come to Britain for a meeting with other medical experts to try to give a definitive verdict on his condition.

Judge Nicholas Francis, whose original ruling has also been upheld by the European Court of Human Rights, said the meeting needed to be held in the next couple of days.

"If there is important new evidence that suggests my decision should be changed then I will change it," he said. A hearing to confirm the details will take place on Friday.

The case has provoked heated debate and the judge revealed that some staff from GOSH including doctors and lawyers had been subjected to "the most vile abuse and threats."

"It has been and remains the unanimous view of all of those caring for Charlie at Great Ormond Street that withdrawal of ventilation and palliative care are all that the hospital can offer him consistent with his welfare," the hospital said in a position statement to the court. (Editing by Mark Potter and Hugh Lawson)

U.S. expert flies to Britain to examine baby Charlie Gard .
<p>A U.S doctor offering experimental treatment to a critically ill British baby is due in London this week to help persuade a judge to keep the boy's life support switched on, in a case that has prompted a fierce debate around the world about medical ethics.</p>The parents of Charlie Gard, who has a rare genetic condition causing progressive muscle weakness and brain damage, have been fighting a legal battle to send him to the United States for the neurologist's experimental therapy. But Britain's courts have refused permission on the grounds it would prolong his suffering without a realistic prospect of it helping.

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